Netherton syndrome is rare — every new clinician starts from zero, and daily skin care never stops. Map skin region by region (redness, scaling, irritation), track itch, pain, and sleep impact, capture the weather that changes NS skin, and hand dermatology and genetics a record that explains it for you.

Highlights

A body map for NS skin — tap any region to rate its redness, scaling, and irritation
Overall itch, pain, and sleep-impact sliders, photos to compare skin over time, and skin-care and treatment tracking
Weather matters for NS skin — optional local temperature and humidity captured with every entry
Built for families — track your own skin or log on behalf of your child; PDF/CSV for dermatology and genetics

Screens

A record your team can use — rare means explaining everything; this does it for you.
Tap the map. Rate the skin. Redness, scaling, and irritation, region by region.
Weather matters for NS skin — optional temperature and humidity with every entry.
For dermatology and genetics — trends by region, plus a PDF report on demand.

Netherton syndrome — Comel-Netherton syndrome, the rare SPINK5-related genetic skin condition whose features include ichthyosis linearis circumflexa and bamboo hair — comes with the rare-disease reality: every new clinician starts from zero, the daily skin care is relentless, and the weather genuinely changes the skin. This app carries the explanation for you, visit after visit.

It’s built for the families who manage NS day by day — whether you’re tracking your own skin or logging on behalf of your child. Tap any region on the body map to rate redness, scaling, and irritation; track overall itch, pain, and sleep impact; add photos to compare over time; and log skin care, treatments, and medications alongside optional local temperature and humidity. Insights turn weeks of careful tracking into trends by region — a shareable record for dermatology and genetics teams, exportable as PDF or CSV. An Apple Watch or Wear OS companion app is included for quick one-tap entries from your wrist.

This app is a personal tracking journal — not a medical device, and not a substitute for medical advice, diagnosis, or treatment.

Features

Tap the map. Rate the skin.

A body map where any region can be rated for redness, scaling, and irritation — detailed enough to show which zones are changing, quick enough to use every day.
Weather matters for NS skin

Optional local temperature and humidity capture with every entry, because weather genuinely changes Netherton skin — and the correlation belongs in the record.
For dermatology and genetics

Insights trend severity by body region, itch and sleep impact, and flare patterns — a shareable record for dermatology and genetics teams, with PDF reports and CSV export.

Your privacy

Your health data stays on your device by default — local-first, no account required to begin. helperly.org never sells your data. The app helps you log and understand patterns; it does not provide a diagnosis or medical advice. The free version is ad-supported through Google AdMob, which applies its own ad tracking; upgrade to remove ads.

What's new

Pre-launch June 1, 2026

Preparing for App Store and Google Play release. Join the waitlist to hear the moment it's live.

Available in 14 languages

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Questions about Netherton Syndrome?

Coming soon. Reach our team through the protected support form — we read every message.

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